Invest in ME Research

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  • A UK Centre of Excellence for ME A New Direction for Research into ME

Invest in ME Research - an independent UK charity

Finding, facilitating and funding research into ME

What is ME? News Quick Links Research Info Library Campaigns

ME - What it IS…

  • Myalgic Encephalomyelitis (ME) is a severe systemic, acquired illness
  • Estimated to be 2* as common as MS and 3* times more prevalent than HIV/AIDS,
  • Clear clinical symptoms which manifest predominantly based on neurological, immunological and endocrinological dysfunction
  • Multi-factorial pathogenesis with the hypothesis of initiation by a viral infection prominent.
  • Most frequently follows an acute prodromal infection, varying from upper respiratory infections, bronchitis or sinusitis, or gastroenteritis, or an acute “flu-like” illness.
  • Before acquiring ME most patients were healthy, leading full and active lifestyles.
  • Reaction to physical and mental activity and sensory input is unique to ME.
  • Over-exertion can make ME worse and the effects are often delayed and may not be seen within 24 hours.
  • Symptoms can range from mild to very severe and can include:
  • Cardiac and Cardiovascular Problems
    • Cognitive Dysfunction
    • Gastro-intestinal Problems
    • Headaches
    • Hormonal Imbalance
    • Immunological Problems
    • Muscle Weakness and Intense Pain
    • Neurological Problems
    • Sleep Problems
read more

What Needs To Be Done?

The last decades have seen no major investment into correct research into myalgic encephalomyelitis.
Instead an approach to research has been taken which, despite objections from the patient community, has largely funded flawed psychiatric research about the disease.

This needs to be changed. Funding has to be given to biomedical research and new knowledge from other disciplines such as virology, immunology , endocrinology etc has to be brought in to help research into ME.

High Quality Biomedical Research

The most promising route to finding cause and treatment

Correct Examinations for Patients

In order to perform clinical trials the cohort of patients being used need to be correctly categorised. This demands consultants to correctly diagnose ME. This does not occur in all cases presently.

Up-to-Date Education

Education about ME is the foundation for future treatments. Medical students and the government and media outlets need correct and up-to-date information and education about ME.

Adequate Funding

There has been very little funding for biomedical research into ME.


What Are We Doing?

Invest in ME Research has produced a strategy of answers to the major problems and we are attempting as best we can to effect the necessary change.

High Quality Biomedical Research

Invest in ME Research has initiated and funded high-quality biomedical research at UCL and UEA and IFR - and brought in collaborations with other researchers in Bergen, Uppsala, Berlin and within the UK in Oxford. Research

Correct Examinations

Our aim is to have consultants who specialise in ME performing a thorough set of examinations for people with ME.

Up-to-Date Education

We have implemented a plan to educate medical students by allowing them to intercalate in their fourth year of training into biomedical research projects we are funding.

Adequate Funding

Invest in ME Research and supporters have raised almost £700,000 in recent years for biomedical research.


About Us

Invest in ME Research (IiMER) was set up with the objectives of making a change in how ME is perceived and treated in the media, by health departments and by healthcare professionals. We aim to do this by identifying the three key areas to concentrate our efforts on - funding for biomedical research, education and lobbying. Invest in ME Research aims to collaborate and coordinate events and activities in these areas in order to provide the focus and funding to allow biomedical research to be carried out.

Invest in ME Research want to establish an international strategy of biomedical research into ME and establish a UK and European Centre of Excellence for biomedical research into ME. Please help make ME an illness which is properly understood and where adequate funding is provided for biomedical research into ME allowing treatments and cures to be found.

A Centre of Excellence for ME

Invest in ME Research - an independent UK charity

Building a solid foundation for future biomedical research into ME.

"....with the other expertise and facilities located at the Norwich Research Park, puts it in a very good position to lead a UK and European Centre of Excellence for biomedical research for M.E. to provide possible prevention and solutions."

- Professor Ian Charles Director of Institute of Food Research and Head of Quadram Institute


Use Our Website

Research

Our research strategy and the research funded by the charity

Information

Information and articles about ME

Conferences

Our annual international Colloquiums/Conferences

Fundraising

Details of our fundraising activities and how to help us

News

Current and archived news from the charity

About Us

More information about the charity

Centre of Excellence for ME

Our proposal for a UK Centre of Excellence for ME

Education

Useful educational aids for ME awareness

Upcoming Events

7th Invest in ME Research International Biomedical Research into ME Colloquium

#BRMEC7 - our seventh international Biomedical Research into ME Colloquium - held in London - on 31st May - 1st June 2017. More details here.

#IIMEC12 Pre-Conference Dinner 1st June

Invest in ME Research #IIMEC12 Pre-Conference Dinner with keynote speaker David Tuller David Tuller DrPh, academic coordinator of University of California Berkeley's joint masters program in public health and journalism. David's presentation will be on the subject of the #PACETrial. #TearItUp
More details here Click here.

12th Invest in ME Research International ME Conference 2017

#IIMEC12 - our twelth ME international conference heldin London - on 2nd June 2017 at One Great George Street. More details here.

Our last Colloquium and Conference

Our Current Colloquium and Conference was in May-June 2017.

The BRMEC7 research Colloquium was held on 31st May - 1st June 2017.

The IIMEC12 Conference was held on 2nd June 2017.

Click on the image on the right to go to the latest Conference page - #IIMEC12.

read more

Other Invest in ME Research Activity


Research

IIMER are facilitating a strategy of biomedical research into ME. The charity is currently funding possibly the two most important research projects for ME in the UK.
Currently the main hubs of research are at UEA/IFR in the Norwich Research Park and at UCL.

Advisory Board

The IIMER Advisory Board is made up of eminent reseachers who are helping the charity to form a credible and productive biomedical research strategy which will provide the best and quickest route for translating research into possible treatments and cures for this disease.

European Collaboration

Invest in ME Research are one of the founder members of the European ME Alliance (EMEA) – a grouping of charities and patient organisations working together across Europe. Now thirteen countries collaborating.


Let's Do It For ME

Let's do it for ME! is a patient-driven campaign to raise awareness and vital funds for a UK Centre of Excellence for translational biomedical research into ME, clinical assessment, diagnosis and treatment for patients, training and information for healthcare staff, which would be based around the Norwich Research Park in the UK and aiming to work collaboratively with international biomedical researchers.

Research Colloquiums

In addition to the International ME Conference the charity also organises an annual International Research Colloquium which attracts researchers from around the world in order to discuss experiences and open up collaborations in order to find answers for this disease. By facilitating and initiating these links far quicker progress can be made in finding the cause of this disease.

Centre of Excellence for ME

Translational biomedical research - an iterative feedback of information between the basic and clinical research domains in order to accelerate knowledge translation from lab to bedside and back to lab again - allows translation of findings in basic research more quickly and efficiently into medical practice to produce more meaningful health outcomes and facilitate the sharing of repositories and research-based facilities and laboratories. This is the model IiMER are attempting to promote in our proposal for an examination and research facility based in Norwich.



Comments About Invest in ME Research Conferences


Just wanted to congratulate you on an excellent conference last week. It was great to see so many of the leading researchers into ME all in one room, and all pulling in the same direction.

- Delegate

I really believe all this is due to the amazing job you have been doing through the years building up this network of research excellence connected to ME patients. It is said that if a boat is not pushed it will never advance… You are definitively the best motor the ME boat could have found. Also, without patient participation, researchers can do nothing. (From BRMEC6 researcher delegate)

Thank you for again making this conference available for ordinary patients at such a reasonable price. The conference was extraordinary and brought hope to me and my family. Thank you for all you are doing.

- Delegate

Fantastic conference, many thanks for your hard work. I thought it was fantastic, massively informative, encouraging, inspiring, necessary. It was very powerful hearing so much material from the doctors, researchers and speakers themselves, very, very impressive.

- Delegate

I enjoyed it all - especially being given ideas that may be able to use in practice and to be given ideas for where to look for future research to keep updated in CFS/ME practice. I have been able to gain a better understanding of CFS/ME and diagnostic criteria and changes to it. It is also very useful to be aware of research that is going on and how practices differ in UK to USA.

- From Conference feedback form (from NHS professional)

Thank you for a wonderfully organized conference! The yearly IiME conferences have become the most important events in Europe, with the best speakers and with focus on subjects that really matters in the battle that we are all fighting.

- Delegate

The diverse background of speakers pulling together novel research reflecting similar pathological phenotypes in chronic fatigue with numerous underlying genotypes and infections

- Delegate

It was a professional and superbly run Conference.

- Delegate

This really was the best conference yet ---- WELL DONE indeed to you. Every aspect of the conference works so well and the conference is beginning to get a family feel about it giving some of us the one and only chance each year to meet up.

- Delegate

Opened new lines for looking at literature references, in order to enhance research on CFS/ME.

- Delegate

It is encouraging to see how much research is taking place and how many great medical professionals are making towards diagnosis and more recognition. Having relatives with ME feels much like a solitary experience and it is good to come to an event where there are people who are experiencing the same thing.
Very good organisation of the event, wide variety of speakers and materials.

- Delegate

You are doing incredible work. The whole event was absolutely brilliant.

- Delegate

You are certainly running things efficiently and well and are to be congratulated on arranging and managing this excellent conference!

- Delegate

Twelve Years of IiMER Research Conferences

  1. Centres of Excellence for ME (IIMEC12)
  2. A New Decade of Invest in ME Research (IIMEC11)
  3. Agents for Change (IIMEC10)
  4. Synergising Research into ME (IIMEC9)
  5. Mainstreaming ME Research (IIMEC8)
  6. Building a Future for Research into ME (IIMEC7)
  7. The Way Forward for ME (IIMEC6)
  8. A New Era in ME/CFS Research (IIMEC5)
  9. Sub-Grouping and Treatments for ME/CFS (IIMEC4)
  10. Clinical Diagnosis, Research Trends & Educational Support (IIMEC3)
  11. Building a Future for Research into ME (IIMEC2)
  12. Initiating ME Research (IIMEC1)

The European ME Alliance

Invest in ME Research is a member of the European ME Alliance (EMEA)

The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis and are campaigning for funding for biomedical research to provide treatments and cures for ME.

www.euro-me.org

Quick Links on IiMER Site

Help us

How you can help us

Donate
Help us

Our Funded Research

Research
Help us

Our Advisory Board to assist with ME

Advisory Board
Information About ME

Information on  ME

Information
Conferences

Our International Conferences

Conference
Conferences

Our Research Colloquiums

Colloquiums
Conferences

Sponsorship Opportunities with IiMER

Sponsor Us

What is ME

ME stands for Myalgic Encephalomyelitis.
Benign Myalgic Encephalomyelitis (ME)/Post Viral Fatigue Syndrome (PVFS) is a multisystem, complex, acquired illness with symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME/PVFS has been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases since 1969 (ICD 10 G93.3). Since 1992, the term "Chronic Fatigue Syndrome" (CFS) has been included in the Alphabetical Index and indexed to G93.3.

The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) issued in January 2002 recognises that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease

To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there any specific treatment for this condition.

>What is ME? What is CFS? >Guidelines for ME >IiMER Awareness Leaflet

SHOP with AMAZON

Link to AMAZON

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DONATE via JustTextGiving

Just Text Giving Donate to the Invest in ME Biomedical Research Fund Text IBRF33 £2 / £5 / £10 to 70070 to donate now -

e.g. text the following to 70070

IBRF33 £5

Donate to biomedical research

Donate JustGiving

Donate via Paypal

Donate JustGiving PayPal

Set up a fundraising page

Make a fundraising page JustGiving

Remember someone by setting up a special page

Make an In Memory page JustGiving

Set up a Direct Debit

Set up a direct debit JustGiving

or

See our JustGiving Pages here - click here

DONATE to the BIOMEDICAL RESEARCH FUND

The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.

Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -

  • Biomedical Research into ME

  • Education Regarding ME

  • Conferences related to ME

  • Expenses in Sponsoring Presenters to Speak at Conferences

  • Cost of sponsoring PhD students performing biomedical research into ME

  • Set up and running of ME Clinic treating severely affected patients with ME

  • Assisting with equipment and other costs of researchers performing purely biomedical research into ME

Currently the focus of the BRF is toward the proposal for a UK examinations and research facility for ME. If you would like to help in raising funds please contact us.

To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.

DONATE to the RITUXIMAB TRIAL PROJECTS

Make a one-off donation via JustGiving

You can use your credit card or PayPal and there is an option to use Gift Aid.

DONATE Via JustGiving


Make a one-off donation via credit card or Paypal

You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

DONATE A SPECIFIC AMOUNT HERE



Other Ways to Contribute to the Rituximab Clinical Trial

To read more about the UK Rituximab Clinical Trial projects and ways to donate please go to the UK Rtiuximab Trial web site click on this this link.

DONATE to the GUT MIRCOBIOTA PROJECTS

The UK Gut Microbiota Research project aims to find whether there is evidence of a leaky gut in ME patients.

This is the foundation research project in our proposal for a research and development facility which could lead to a UK Centre of Excellence for ME.

To read more about the UK Gut Microbiota projects please go to this link.

HELP US FUND INVEST in ME RESEARCH CONFERENCES

The Invest in ME International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians for almost 10 years.

The Invest in ME International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers.This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.

To see what has been performed over ten years please go to this link.

Easyfundraising

provides a FREE service where you can shop with your favourite online stores and at no extra cost raise funds for Invest in ME.

You still shop directly with each retailer as you would normally, but simply by using the links from this site first, each purchase you make will generate a cashback donation to Invest in ME.

Click on the image above.

Surf the Web with Every Click

 

By using Every Click (click here) and making IiMER your charity of your choice then you can earn money for IiME.

This can really make a difference to Invest in ME Research.

This is a really easy way to assist funding of biomedical research.

Buy our wrist bands

to support biomedical research.

An easy way to spread awareness.

£1 each - (click on our logo above)

Make a One-off Donation via Credit Card or Paypal

 

Make a one-off donation via credit card or Paypal

You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

DONATE A SPECIFIC AMOUNT HERE

 

Make a Monthly Donation via Credit Card or PayPal

Make a monthly donation via credit card or PayPal

If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

 

DONATE A MONTHLY AMOUNT HERE
 

For regular monthly donations - select option

DONATE Via JustTextGiving Using Yyour Mobile Phone

Make a one-off donation via JustGiving

You can use your credit card or PayPal and there is an option to use Gift Aid.

Here is the link for donations via JustTextGiving -

 

DONATE Via JustTextGiving

using your mobile phone


 
Text RTUX66 £2 / £5 / £10 to 70070 to donate now -

e.g. text the following to 70070

RTUX66 £5


DONATE Via A CHEQUE

Send a cheque

You can use your credit card or PayPal and there is an option to use Gift Aid.

Please make out your cheque to Invest in ME, say in the cover letter it's for the Rituximab trial and mail it to:

Invest in ME

PO Box 561

Eastleigh

Hampshire SO50 0GQ

UK

 

If you are a UK taxpayer, please complete our Gift Aid form and enclose it with the cheque.

http://www.investinme.org/Documents/Gift%20Aid%20Form%20appendix_b1.pdf

HELP US FUND INVEST in ME RESEARCH CONFERENCES

6/ Via Bank Transfer To make a direct bank to bank transfer of funds then this is the bank account for the IiME UK rituximab trial -

Bank Name LLOYDS BANK
Bank Address 36 Market Street
Eastleigh
Hampshire SO50 9YT
England
Lloyds Bank Sort code 30-92-94
   
Account Number 30061668
   
Account Name IiME Biomedical Research Fund RITUXIMAB
   
Bank’s account number (IBAN) GB63 Loyd 3092 9402 2526 85
BIC/SWIFT number

BIC:   LOYDGB21209                              

If you are a UK taxpayer, please complete our Gift Aid form and enclose it with the cheque. http://www.investinme.org/Documents/Gift%20Aid%20Form%20appendix_b1.pdf

Easyfundraising

The MATRIX Another method to help with fundraising idea is take a slot in The MATRIX - our unique fundraising scheme to raise funds for biomedical research. For details of The MATRIX for fundraising - click here.

TRF - The Recycling Factory

The Recycling Factory collect over 8 million inkjet & toner cartridges and mobile phones each year whilst upholding a commitment to zero landfill, which ensures that products are disposed of in an ethical & environmentally friendly way. Donation is made to IiMER depending on the item. Click on the image above.

GIVE A CAR

Turn your old car into cash for your favourite charity. We arrange free collection and then either sell your car at auction or scrap it. The profits are then donated to the charity of your choice. Click on the image above.

E-baY

Help us fund biomedical research into ME by contributing to ME-bay. It's easy. If you are selling items through EBAY then you can follow these steps to add Invest in ME Research as your charity of choice -
  • Start selling on eBay
  • Sign into your eBay account and click "sell" to list an item, just as you normally do.
  • Choose to donate
  • In the "Pricing & Duration" section of the Sell Your Item form, choose "Donate a percentage of sale to charity" to launch the eBay for Charity feature.
  • Select a charity and donation percentage
  • Find Invest in ME Research in the MissionFish charity directory.
  • Then choose how much of your final sale price (10%-100%) you would like to donate. A £2 minimum donation applies.
  • Finish your listing
  • Once you select Invest in ME Research as the charity to benefit from your listing, review your listing details and submit it as usual.
Click on the image above.

Candle House

10 Cards of Candle House © Julie-Ann Gylaitis

Size 11.5cm by 17.2 cm

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

All I Want for Christmas

10 Cards of  All I Want for Christmas © Sarah Mozer

Size 15cm by 15cm

Choose an option from dropdown depending on your location

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Candles

10 Cards of Candles © Marguerita Mawer

Size 15cm by 15cm

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Joy

10 Cards of Joy © Becca Hams

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Tealights

10 Cards of Tealights © Claire Stott

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Jingle Bells

10 Cards of Jingle Bells © Lisa Pepper

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Christmas Bauble

10 Cards of Christmas Bauble © Matthew Eccleston

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box Please remember to click on the actual price for your country in the drop-down box

Science, Politics and ME

Science, Politics and ME

The book has not yet been published. Please return here at a later date.

International Conference DVDs

International Conference DVDs

IIMEC* Conference DVDs

Please note:
This is for purchasing conference DVDs for UK delivery.
Please use the relevant option for delivery to Europe or outside Europe.
For more details about each conference please go to the coference website - click here

More details of previous conferences at this link - http://www.investinme.eu/IIMEC12-pastconferences.shtml

CCC Guidelines

CCC Guidelines

Copies of CCC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org

Please note:
We order batches of guidelines depending on requirements.

ICC Guidelines

ICC Guidelines

Copies of ICC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org

Please note:
We order batches of guidelines depending on requirements.

HELP US FUND INVEST in ME RESEARCH CONFERENCES

The Invest in ME Research International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians for almost 10 years.

The Invest in ME Research International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers.This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.

To see what has been performed over ten years please go to this link.

DONATE to the BIOMEDICAL RESEARCH FUND

The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.

Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -

  • Biomedical Research into ME

  • Education Regarding ME

  • Conferences related to ME

  • Expenses in Sponsoring Presenters to Speak at Conferences

  • Cost of sponsoring PhD students performing biomedical research into ME

  • Set up and running of ME Clinic treating severely affected patients with ME

  • Assisting with equipment and other costs of researchers performing purely biomedical research into ME

Currently the focus of the BRF is toward the proposal for a UK examinations and research facility for ME. If you would like to help in raising funds please contact us.

To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.

DONATE to the B-Cell / RITUXIMAB TRIAL PROJECTS

Make a one-off donation via JustGiving

You can use your credit card or PayPal and there is an option to use Gift Aid.

DONATE Via JustGiving


Make a one-off donation via credit card or Paypal

You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

DONATE A SPECIFIC AMOUNT HERE



Other Ways to Contribute to the B-cell Research and Rituximab Clinical Trial

To read more about the B-cell research and the UK Rituximab Clinical Trial projects and ways to donate please go to the microsite click on this this link.

DONATE to the GUT MICROBIOTA PROJECTs

The UK Gut Microbiota Research project aims to find whether there is evidence of a leaky gut in ME patients.

This is the foundation research project in our proposal for a research and development facility which could lead to a UK Centre of Excellence for ME.

To read more about the UK Gut Microbiota projects please go to this link.

DONATE for CENTRE of EXCELLENCE for ME

The Centre of Excellence for ME is a project proposed by Invest in ME Research to establish a hub for biomedical research into ME. Please support us

This link takes one to the C of E for ME site please go to this link.

DONATE for MEDICAL STUDENTS in RESEARCH into ME

The Centre of Excellence for ME is a project created by Invest in ME Research. Part of this project proposal isthe inclusion of medical students who will intercalate during their fourth year of study and participate in the biomedicalresearch.

To read more about the mwdical students in ME please go to this link.

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  • Address: PO Box 561 Eastleigh Hampshire SO50 0GQ

  • Phone: 02380 643736 / 07759 349743

  • Email: info@investinme.org

  • Charity Nr: 1153730

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DISCLAIMER

The pages on this web site are offered as a free access information provider.
The views expressed on this web site by contributors and others do not necessarily represent those of Invest in ME Research.

No medical recommendations are given or implied.

Patients with any illness are recommended to consult their personal physician at all times.

The views expressed at the Invest in ME/Invest in ME Research International ME Conferences and at other Invest in ME/Invest in ME Research conferences and Colloquiums by the presenters and delegates to the Colloquiums/Conferences and any information material distributed are their own personal opinions that are not necessarily shared or endorsed by the Trustees of the charity.

Invest in ME/Invest in ME Research accept no responsibility for the views expressed or any subsequent action taken.

The contents of any presentation should not be deemed to be an endorsement, recommendation or approval of such content by Invest in ME/Invest in ME Research.

The materials presented at the Invest in ME/Invest in ME Research International ME Conferences or by contributors to this web site do not constitute medical advice.

No medical recommendations are given or implied by Invest in ME/Invest in ME Research.

Any person registering or attending the conferences or who use information from this web site and who may take any action or consider medical treatment or referrals should take detailed advice from their own medical practitioner always. Invest in ME/Invest in ME Research disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information contained in this website.

SHOP with AMAZON

Link to AMAZON

Shop with Amazon

DONATE via JustTextGiving

Just Text Giving Donate to the Invest in ME Biomedical Research Fund Text IBRF33 £2 / £5 / £10 to 70070 to donate now -

e.g. text the following to 70070

IBRF33 £5

Donate to biomedical research

Donate JustGiving

Donate via Paypal

Donate JustGiving PayPal

Set up a fundraising page

Make a fundraising page JustGiving

Remember someone by setting up a special page

Make an In Memory page JustGiving

Set up a Direct Debit

Set up a direct debit JustGiving

or

See our JustGiving Pages here - click here

DONATE to the BIOMEDICAL RESEARCH FUND

The Biomedical Research Fund (BRF) provides a means to fund biomedical research into ME and avoid the constraints or influence of policies which do not focus on researching ME properly. In addition education is a major part of biomedical research. Students need to attend conferences such as ours, healthcare professionals need to have the latest research presented to them regarding ME and researchers themselves need to meet, network and establish working relationships with each other. Researchers must also begin sharing data and working in co-operation.

Our aim is to build sustainable and developing collaborations with translational biomedical research at the heart of all research. The Invest in ME Research Biomedical Research Fund will be used for the following -

  • Biomedical Research into ME

  • Education Regarding ME

  • Conferences related to ME

  • Expenses in Sponsoring Presenters to Speak at Conferences

  • Cost of sponsoring PhD students performing biomedical research into ME

  • Set up and running of ME Clinic treating severely affected patients with ME

  • Assisting with equipment and other costs of researchers performing purely biomedical research into ME

Currently the focus of the BRF is toward the proposal for a UK examinations and research facility for ME. If you would like to help in raising funds please contact us.

To donate to the Invest in ME Research "Can Do" biomedical research fund please use the links above.

DONATE to the RITUXIMAB TRIAL PROJECTS

Make a one-off donation via JustGiving

You can use your credit card or PayPal and there is an option to use Gift Aid.

DONATE Via JustGiving


Make a one-off donation via credit card or Paypal

You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

DONATE A SPECIFIC AMOUNT HERE



Other Ways to Contribute to the Rituximab Clinical Trial

To read more about the UK Rituximab Clinical Trial projects and ways to donate please go to the UK Rtiuximab Trial web site click on this this link.

DONATE to the GUT MIRCOBIOTA PROJECTS

The UK Gut Microbiota Research project aims to find whether there is evidence of a leaky gut in ME patients.

This is the foundation research project in our proposal for a research and development facility which could lead to a UK Centre of Excellence for ME.

To read more about the UK Gut Microbiota projects please go to this link.

HELP US FUND INVEST in ME RESEARCH CONFERENCES

The Invest in ME International ME Conferences are CPD accredited biomedical conferences which provide a platform for the latest information and biomedical research on myalgic encephalomyelitis. They attract the most renowned speakers from all over the world - and are valuable sources of education and information for healthcare professionals, doctors, nurses, researchers, ME support groups and people with ME. They provide an excellent insight into these areas and the issues currently facing the healthcare and ME patient communities. Our conferences and, later, our Colloquiums have been facilitating interaction and sharing of information between patients, researchers and clinicians for almost 10 years.

The Invest in ME International Biomedical Research into ME Colloquiums began as a way of bringing together researchers from around the world in a round-table discussion of ME research and ideas. Over the years this has broadened to sharing of experiences, data and plans. The charity has now put in place the key building blocks to take ME research into the 21st century with high-quality biomedical research in world class organisations being performed by some of the best researchers.This is a basis for a strategy of international biomedical research which will hold far greater promise of creating proper funding and awareness of biomedical research into ME.

To see what has been performed over ten years please go to this link.

Easyfundraising

provides a FREE service where you can shop with your favourite online stores and at no extra cost raise funds for Invest in ME.

You still shop directly with each retailer as you would normally, but simply by using the links from this site first, each purchase you make will generate a cashback donation to Invest in ME.

Click on the image above.

Surf the Web with Every Click

 

By using Every Click (click here) and making IiMER your charity of your choice then you can earn money for IiME.

This can really make a difference to Invest in ME Research.

This is a really easy way to assist funding of biomedical research.

Buy our wrist bands

to support biomedical research.

An easy way to spread awareness.

£1 each - (click on our logo above)

Make a One-off Donation via Credit Card or Paypal

 

Make a one-off donation via credit card or Paypal

You can use your credit card or PayPal. If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

DONATE A SPECIFIC AMOUNT HERE

 

Make a Monthly Donation via Credit Card or PayPal

Make a monthly donation via credit card or PayPal

If you are a UK tax payer then you can gift aid the donation - please contact us via email to state that you wish for the donation to be gift aided.

 

DONATE A MONTHLY AMOUNT HERE
 

For regular monthly donations - select option

DONATE Via JustTextGiving Using Yyour Mobile Phone

Make a one-off donation via JustGiving

You can use your credit card or PayPal and there is an option to use Gift Aid.

Here is the link for donations via JustTextGiving -

 

DONATE Via JustTextGiving

using your mobile phone


 
Text RTUX66 £2 / £5 / £10 to 70070 to donate now -

e.g. text the following to 70070

RTUX66 £5


DONATE Via A CHEQUE

Send a cheque

You can use your credit card or PayPal and there is an option to use Gift Aid.

Please make out your cheque to Invest in ME, say in the cover letter it's for the Rituximab trial and mail it to:

Invest in ME

PO Box 561

Eastleigh

Hampshire SO50 0GQ

UK

 

If you are a UK taxpayer, please complete our Gift Aid form and enclose it with the cheque.

http://www.investinme.org/Documents/Gift%20Aid%20Form%20appendix_b1.pdf

HELP US FUND INVEST in ME RESEARCH CONFERENCES

6/ Via Bank Transfer To make a direct bank to bank transfer of funds then this is the bank account for the IiME UK rituximab trial -

Bank Name LLOYDS BANK
Bank Address 36 Market Street
Eastleigh
Hampshire SO50 9YT
England
Lloyds Bank Sort code 30-92-94
   
Account Number 30061668
   
Account Name IiME Biomedical Research Fund RITUXIMAB
   
Bank’s account number (IBAN) GB63 Loyd 3092 9402 2526 85
BIC/SWIFT number

BIC:   LOYDGB21209                              

If you are a UK taxpayer, please complete our Gift Aid form and enclose it with the cheque. http://www.investinme.org/Documents/Gift%20Aid%20Form%20appendix_b1.pdf

Easyfundraising

The MATRIX Another method to help with fundraising idea is take a slot in The MATRIX - our unique fundraising scheme to raise funds for biomedical research. For details of The MATRIX for fundraising - click here.

TRF - The Recycling Factory

The Recycling Factory collect over 8 million inkjet & toner cartridges and mobile phones each year whilst upholding a commitment to zero landfill, which ensures that products are disposed of in an ethical & environmentally friendly way. Donation is made to IiMER depending on the item. Click on the image above.

GIVE A CAR

Turn your old car into cash for your favourite charity. We arrange free collection and then either sell your car at auction or scrap it. The profits are then donated to the charity of your choice. Click on the image above.

E-baY

Help us fund biomedical research into ME by contributing to ME-bay. It's easy. If you are selling items through EBAY then you can follow these steps to add Invest in ME Research as your charity of choice -
  • Start selling on eBay
  • Sign into your eBay account and click "sell" to list an item, just as you normally do.
  • Choose to donate
  • In the "Pricing & Duration" section of the Sell Your Item form, choose "Donate a percentage of sale to charity" to launch the eBay for Charity feature.
  • Select a charity and donation percentage
  • Find Invest in ME Research in the MissionFish charity directory.
  • Then choose how much of your final sale price (10%-100%) you would like to donate. A £2 minimum donation applies.
  • Finish your listing
  • Once you select Invest in ME Research as the charity to benefit from your listing, review your listing details and submit it as usual.
Click on the image above.

Candle House

10 Cards of Candle House © Julie-Ann Gylaitis

Size 11.5cm by 17.2 cm

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

All I Want for Christmas

10 Cards of  All I Want for Christmas © Sarah Mozer

Size 15cm by 15cm

Choose an option from dropdown depending on your location

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Candles

10 Cards of Candles © Marguerita Mawer

Size 15cm by 15cm

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Joy

10 Cards of Joy © Becca Hams

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Tealights

10 Cards of Tealights © Claire Stott

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Jingle Bells

10 Cards of Jingle Bells © Lisa Pepper

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box

Christmas Bauble

10 Cards of Christmas Bauble © Matthew Eccleston

Choose one of the options below

Please note:
the copyright text is not on the actual cards
Please remember to click on the actual price for your country in the drop-down box Please remember to click on the actual price for your country in the drop-down box

Science, Politics and ME

Science, Politics and ME

The book has not yet been published. Please return here at a later date.

International Conference DVDs

International Conference DVDs

IIMEC* Conference DVDs

Please note:
This is for purchasing conference DVDs for UK delivery.
Please use the relevant option for delivery to Europe or outside Europe.
For more details about each conference please go to the coference website - click here

More details of previous conferences at this link - http://www.investinme.eu/IIMEC12-pastconferences.shtml

CCC Guidelines

CCC Guidelines

Copies of CCC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org

Please note:
We order batches of guidelines depending on requirements.

ICC Guidelines

ICC Guidelines

Copies of ICC Guidelines may be ordered by contacting Invest in ME Research at this email address - info@investinme.org

Please note:
We order batches of guidelines depending on requirements.

What is ME

ME stands for Myalgic Encephalomyelitis.
Benign Myalgic Encephalomyelitis (ME)/Post Viral Fatigue Syndrome (PVFS) is a multisystem, complex, acquired illness with symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME/PVFS has been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases since 1969 (ICD 10 G93.3). Since 1992, the term "Chronic Fatigue Syndrome" (CFS) has been included in the Alphabetical Index and indexed to G93.3.

The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) issued in January 2002 recognises that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease

To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis nor is there any specific treatment for this condition.

>What is ME? What is CFS? >Guidelines for ME >IiMER Awareness Leaflet

SUPPORT INVEST in ME RESEARCH
SUPPORT BIOMEDICAL RESEARCH into ME

Please help us in raising funds for biomedical research and for performing activities related to biomedical research.

By buying an Invest in ME Research wristband you will be helping IiMER in its work as well as promoting the message that biomedical research into ME is the only way to make real progress in finding treatments and cures for this illness.

Sell them to friends, family, work colleagues - even in your local library, GP surgery or hospital.

Support Invest in ME Research - Support Biomedical Research into ME


The IiMER wristbands may be purchased in packages of 5

For UK delivery For European delivery or delivery outside Europe
£6 £7 £9

To purchase and pay online use the boxes below or pay by cheque.

PAY ONLINE
Order
Wristbands BlueK

Or Pay by Cheque
Send a cheque, made payable to Invest in ME Research , to the following address, indicating how many you would like -
Invest in ME Research
PO Box 561
Eastleigh SO50 0GQ
Hampshire
UK

Support ME Awareness - Invest in ME Research

IiMER Posters

We have a number of posters available which can be downloaded, or in some cases ordered from the charity. These can be useful as leaflets during ME Awareness Month and beyond. We are happy to provide leaflets to groups and to support others' campaigns - if we have the financial resources to do so


Posters

rituximab poster
rituximab poster
Big Cause White
Big Cause Black

IiMER Banners

We have some banners which can be made available for events.

Money Boxes

Money boxes can be placed in newsagents, ships, airports, canteens etc.

IiMER T-shirts

T-shirts are available for events in which findraising for IiMER takes place.

Info Postcards

Informational post cards to help publicise the charity's research strategy and raise awareness of ME.

To be sent to GPs, hospitals, media, schools and libraries.

Order from IiMER.



SUPPORT INVEST in ME Research
SUPPORT BIOMEDICAL RESEARCH into ME

Please help us in raising funds for biomedical research and for performing activities related to biomedical research.

By buying an Invest in ME Research wristband you will be helping IiMER in its work as well as promoting the message that biomedical research into ME is the only way to make real progress in finding treatments and cures for this illness - via our Centre of Excellence for ME.

Sell them to friends, family, work colleagues - even in your local library, GP surgery or hospital.

Support Invest in ME Research - Support Biomedical Research into ME


These IiMER wristbands may be purchased in packages of 5.

For UK delivery For European delivery or delivery outside Europe
£7 £8 £10

To purchase and pay online use the boxes below or pay by cheque.

PAY ONLINE
Choose location from drop down box
Wristbands Yellow

PAY by CHEQUE


Send a cheque, made payable to Invest in ME Research , to the following address, indicating how many you would like -
Invest in ME Research
PO Box 561
Eastleigh SO50 0GQ
Hampshire
UK

Support ME Awareness - Invest in ME Research

Quick Links on IiMER Site

Help us

How you can help us

Donate
Help us

Our Funded Research

Research
Help us

Our Advisory Board to assist with ME

Advisory Board
Information About ME

Information on  ME

Information
Conferences

Our International Conferences

Conference
Conferences

Our Research Colloquiums

Colloquiums
Conferences

Sponsorship Opportunities with IiMER

Sponsor Us

Current News Items

23 July: IiMER submitted its response to the NICE Guidelines for CFS/ME Consultation Review.

The charity has submitted a response in excess of eight thousand words to NICE in which we set out our reasons for an update or a complete rewrite of the NICE guidelines for ME. Click here

21 July: IiMER Has places in Royal Parks Half Marathon.

The charity has three places available for entry in the Royal Parks Half Marathon in October.
Apply in this link. Click here

14 July: GMC drop case against Dr Nigel Speight.

The GMC have decided to close the case against Dr Nigel Speight with no action.
Nigel wishes to thank everyone for all the support over this last 18 months Click here

6 June: A new primer for ME/CFS Diagnosis and Management in Young People

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer written by the International Writing Group for Pediatric ME Click here

6 June: A new primer for ME/CFS Diagnosis and Management in Young People

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer written by the International Writing Group for Pediatric ME Click here

6 June: New member of IiMER Advisory Board

We are very pleased and honoured to announce that Anne Cooke, Emeritus Professor of Immunobiology at University of Cambridge, has agreed to join the advisory board of Invest in ME Research. Click here

6 June: Journal of IiMER

The latest Journal of IiMER has been made available. Click here